This module is aimed in giving the new Epilepsy Foundation worker a foundation in understanding the importance of the EMP and how it forms one of the central pillars in the training and service environment.
It is advisable to view the EMP guidelines first so you can understand the context of the document:
The EF worked over a couple of years in partnership with Scope, Melba Support Services, Villa Maria and the Department of Human Services to develop this template. The objective was to create a disability sector-wide template that espoused the idea of 'one person - one plan'.
As a result of this work, this partnership was awarded the 2013 Victorian Disability Sector Award for Excellence in Improving Health. It is the standard template used in all DHS residential services in Victoria and is part of DHS's policy. Many other community service organisations use the template, and we strongly promote it's use in all our service and training.
Just as the phrase “person centred” suggests, it’s all about putting the person at the centre of decisions which relate to their life. The ultimate aim of a person centred approach is to understand what the person wants and needs to live their own, personally defined, good life.
This ongoing process involves listening, thinking together with their family and friends, coaching, sharing ideas and seeking feedback to ensure they are supported towards their personal goals, even as they evolve and change.
When supporting a person with epilepsy, safety is often a concern. It's important to ensure that discussions are balanced between, firstly, what is important TO the person, and then what is important FOR the person.
A good example of this is Ben, who says his privacy whilst bathing is really important TO him. He will however readily acknowledge that his safety is very important FOR him as well.
Together with his family and support worker, they implemented the following strategy:
OT assessment that recommended a mobile bath seat that can be used when Ben is feeling tired
Removal of glass shower screen, and replacement with plastic shower curtain
Recognising that Ben had a higher incidence of seizure activity in the afternoon, so organising showers in the morning with the support worker
Agreement that Ben will sing/talk during the entire duration of the shower, while the support worker waited outside the bathroom, ready to enter the moment Ben stopped singing/talking
Ben's support needs are then documented in the EMP.
It is important that all EF trainers understand person-centred practices and espouse this in training. This approach underpins the disability sector today, and is one of the founding philosophies of the NDIS and the self managed funding model.
The language used in this approach is important. We never use the word 'fit' to describe a seizure. Even if the person living with epilepsy uses this term, we use the word 'seizure'. A quick summary of other preferred terms is below:
What era in the disability sector focused on the person as a 'patient' who needed to be 'cared' for?
Person Centred Planning:
Select the correct term from the menu below:
Distinguish elements of a ‘good’ EMP
Which statement is incorrect:
Apply the approach 'Targeted questions - Collaboration - Communication' to given case scenarios
Contacting the parent/guardian should be in what part of the EMP?
If there has been no change to the EMP in the past 12 mths, does the doctor need to re-sign the EMP?
The important reason why an EMP needs to be clear as to whether a staring episode is an absence or focal seizure is:
Support clients in use of the 'Know Me, Support Me' suite of resources in developing an EMP
The resource "Developing an Epilepsy Management Plan" is designed to be used by:
Which document would you recommend for a support worker to use to engage the person with a mild-moderate disability in their upcoming medical appointment?
What formats is the "Learning about Epilepsy" resource in? (tick all that are correct)
Discuss the role of the Epilepsy Trainer in facilitating training using the EMP
Who is more important, the customer (who pays) or the client (person with epilepsy) in fee-for-service training at a school?